The Dystonia Advocacy Network (DAN) is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community.
The DAN welcomes and represents individuals with all forms of dystonia, and is led by the following dystonia organizations:
- Benign Essential Blepharospasm Research Foundation (BEBRF)
- Dystonia Medical Research Foundation (DMRF)
- National Spasmodic Dysphonia Association (NSDA)
- National Spasmodic Torticollis Association (NSTA)
Dystonia advocates develop relationships with their legislative leaders to help them understand the challenges of those living with dystonia. The DAN continuously works to adopt and advance a legislative agenda which raises awareness of dystonia, educates policymakers about dystonia, addresses patient care issues, and moves research forward. Your voice is needed to help find the cure for dystonia.
DYSTONIA ADVOCACY NETWORK RESEARCH WEBINARLearn how efforts to educate lawmakers about dystonia is leading to exciting new research. Dystonia advocates work hard every year to get dystonia included on the list of eligible conditions for study under the Department of Defense Peer Reviewed Medical Program (DoD PRMRP) so that dystonia researchers can compete for funding. This webinar features David Peterson, PhD of the Computational Neurobiology Laboratory at Salk Institute for Biological Studies who shares the work he did funded through this program. CLICK HERE TO VIEW THE WEBINAR
AVOCACY IS YEAR-LONG PROCESS. CLICK HERE TO BECOME A DYSTONIA ADVOCATE